That time again

Time for another endoscopy. Jacksen has to go in tomorrow to get scoped again. On his last scope his eosinophilic count came back high, so we're hoping the restricted diet he's been on will have brought his eos count back down. Which means nothing to most people but what it could mean is that if the count is normal we can start adding in some foods that he couldn't have before. I'm pretty optimistic, I don't know why I just have a feeling his biopsy will be normal. If it's not of course that could be a whole other story. A diagnosis that we have been hoping for a long time we would never be given, but no reason to go down that road before we even get the results. The endoscopy is not a very scary procedure other than him needing anesthesia. Not a huge deal but there's always some fear when my little guy goes under. Especially with my families history of not responding well to anesthesia. The saddest thing is when I have to lay him down in the surgery room. They usually let me stay with him until he falls asleep but the muffled and fading cry while he's going to sleep is something that would break any mommy's heart. I can always hear the sound in my head when I think about it. I'm sure everything will go fine and we should get the results back a few days after the scope.

Had to put some cute pics. Jack thinks its so funny to put things on his head.

This picture makes me laugh every time

I had to put one with him smiling so you know he really does enjoy it, it's not just mommy torturing him

Family

Jacksen got to spend the last couple months with his favorite aunt in the whole world. His aunt Delia came and stayed with us for a little while before she goes off to college. All my brothers and sisters are awesome aunts and uncles but Jacksen really loved spending time with Delia. He even try's to say her name, it just comes out as "DUH" but he knows what he's saying. Now that she's gone if I say her name he walks down the hallway to the room she was staying in, kinda sad. We had some good times and hope she doesn't forget us once she leaves. My family has been such a big part of our lives and so supportive of Me Josh and Jacksen and I couldn't ask for a better family.

It's the little things

We're all guilty of it.... taking the simplest every day tasks for granted. Feeding our son, something most people wouldn't even think twice about, is a daily struggle. So something so little that may seem like no big deal to most people is a huge deal to us. Well, yesterday was a big deal! After eight long months of feeding therapy last night Jacksen ate an entire chicken nugget! I was so happy I could have cried. It took him about half an hour to finish along with lots of distraction, encouragement and water to wash it down. With Jack everything seems to be two steps forward one step backwards, so I'm not counting on it happening again anytime soon, but it was still progress. I know that it will probably still be years before Jacksen eats "normally" but the little things are what keep you motivated to do it everyday.